United States, Louisiana, New Orleans – 05-20-2019 (PRDistribution.com) — Self Care Catalysts, a patient-driven real world data and analytics company, announced today the release of the Health Storylines Creator Platform. The platform enables Physician Scientists and Clinical Trial Researchers to create and deploy a wide variety of mobile tools to bring patient-centered Real World Evidence (RWE) into clinical care and research. Patients monitor and share their real world experiences and activities while receiving treatment, while physician scientists and clinical trial researchers monitor patient progress in real time, over time, capturing their full patient journey. The announcement was made and the platform was demonstrated today at the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) meeting in New Orleans, LA In support of the Platform release, Self Care Catalyts is offering awards to researchers who submit studies that can receive the most benefit from monitoring patient journeys through the Health Storylines Creator Platform. Study areas can include: Oncology, Cardiovascular, Immunology, Rare disease and Neurosciences. Self Care Catalysts will support the chosen investigators with research funding, protocol development, Platform access, analytics, and publication. “Typically, clinical trials or registries administer static patient-reported outcome surveys at clinic visits asking patients to recall past events. This approach is subject to memory degradation and biases. A better approach is to continuously collect granular data to fill informational gaps, with a focus on key inflexion points, for example when patients opt to discontinue a therapy. Resulting data can facilitate understanding of the value of treatments to real patients. Moreover, published research demonstrates that patients have better outcomes when they self-report on their conditions. So an ideal model is to collect information directly from patients during care, to simultaneously inform research and improve care.” said Ethan Basch, MD, an Oncologist at the University of North Carolina and an Advisor to Self Care Catalysts. Dr. Basch continued, “Patient journey data is a new kind of real world data with enormous potential. It can improve our understanding of the holistic patient experience with disease and treatment and can enable near-real time analyses to inform care decisions.” Self Care Catalysts CEO and Founder, Grace Castillo-Soyao said, “The 21st Century Cures Act, now being implemented by the FDA, puts emphasis on capturing data in the real world, in the home and outside of the typical clinical trial setting. Capturing real world data that are actually meaningful to augment clinical care and trials is an area of need across the pharmaceutical value chain. Our platform is now meeting that need, getting the right data at the right time and the right place, beyond the point of care. Our goal is for researchers to get better data for research, and for patients to have better outcomes — so everybody wins. We are also differentiated by building a platform that’s completely flexible and disease-agnostic for a wide variety of research protocols.” Self Care Catalysts is implementing the platform with clinical partners for research protocols which include severe asthma, cancer and heart failure. Included in the network of clinical partners are major research institutions and clinical sites to be named in separate upcoming announcements. “As health care moves into value-based contracting for care and medications, all parts of the health care ecosystem will need to show the value they create. Capturing the experiences of patients during the 99% of time they are away from the clinic will be critical to demonstrating that value.” said Jared Adams, Chief Science Officer of Self Care Catalysts. 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TORONTO, Jan. 23, 2019 /PRNewswire/ – Self Care Catalysts, a digital health company specializing in helping patients with self care through digital therapeutics backed by real-world evidence, is pleased to announce that Dr. Ethan Basch has joined as a Scientific Advisor. Dr. Basch is a world-renowned expert in Oncology and Real World Evidence Outcomes Research and will advise Self Care Catalysts in optimizing their Health Storylines product for the generation of evidence for biomedical sciences and for the next generation of digital therapeutics. “Dr. Basch as a true luminary in the field patient-centered outcomes research and the emerging science and discipline of self-care backed by real world evidence in oncology,” said Grace Castillo-Soyao, CEO of Self Care Catalysts. “The ways in which patients can best manage their conditions is extending the science of medicine and what works in the “real world” beyond clinics and clinical trials. Dr. Basch is one of the best possible experts to help Self Care Catalysts continue to create digital tools and programs to improve patient clinical outcomes and quality of life ” Castillo-Soyao continued, “Dr. Basch is a true pioneer in the field or real world evidence and digital therapeutics. We are thrilled to work with him to drive the science of real world evidence and continue to build pioneering tools for patients.” Basch’s research focuses on the use of patient-reported outcomes and novel technologies to measure the impact of interventions on patients’ experiences, and to inform decisions. According to Dr. Basch, “There are substantial opportunities to improve care quality, outcomes, and the patient experience with emerging technology-based tools. It is exciting to see the innovative approaches being developed that can improves the lives of our patients, and how we deliver cancer treatment.” Dr. Basch will work with Self Care Catalysts to focus on how cancer patients can best direct their own care when away from their doctor or health care system. “For oncology patients, most of their time is spent away from health systems, where they and caregivers make decisions and direct care that can enormously impact outcomes,” says Castillo-Soyao. About Ethan BaschEthan Basch, MD, MSc, is a practicing oncologist and Director of the Cancer Outcomes Research Program at the University of North Carolina in Chapel Hill. Dr. Basch’s research focuses on the use of patient-reported outcomes and novel technologies to measure the impact of interventions on patients’ experiences, and to inform decisions. He has served on the Board of Scientific Advisors of the National Cancer Institute and the Board of Directors of the International Society for Quality of Life Research, and is a member of the Board of Directors of the American Society of Clinical Oncology, and Co-Chair of the cancer Care Delivery Research Committee for the Alliance for Clinical Trials in Oncology. His clinical practice focuses on prostate cancer. Dr. Basch received his BA from Brown University, MD from Harvard Medical School, MSc in Epidemiology from the Harvard School of Public Health, and MPhil in literature from Oxford University. He completed his oncology training at Memorial Sloan-Kettering Cancer Center, where he served on the faculty until taking up his current post at the University of North Carolina. About Self Care Catalysts, Inc. Self Care Catalysts is a patient solutions, intelligence, and analytics company deriving value from patient-centered real world evidence designed to inform care management, treatment decisions, product life cycle management and behavior change interventions. More information may be obtained at https://www.selfcarecatalysts.com/.
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